TRIALS: A Fight for Children with Niemann-Pick Type C, a Fatal Genetic Disease
Por um escritor misterioso
Last updated 14 maio 2024
Children with Niemann-Pick Type C (NPC), their parents and scientists seeking a treatment for this fatal genetic disease. WSJ follows this 6-year fight.
Parents of twins with Niemann-Pick find a treatment
IJMS, Free Full-Text
Greenwich family determined to defeat rare childhood disease
Reno Twins With Rare Disease Involved in Huge Lawsuit - O'Mara Law
PDF) Recent Advances in the Diagnosis and Treatment of Niemann-Pick Disease Type C in Children: A Guide to Early Diagnosis for the General Pediatrician
Niemann-Pick disease type C-presenting as persistent neonatal jaundice: a rare case report
NIH clinical trial begins for treatment of rare, fatal neurological disorder
Families plead with FDA for drug to treat Niemann-Pick Disease Type C
Parents of twins with Niemann-Pick find a treatment
Experimental treatment helps toddler with rare genetic disease - CBS News
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